National Disability Data Asset

One Asset, many potential uses

Message from the National Disability Data Asset Council – May 2024

Council members from left to right. Top row – Catherine McAlpine (community co-chair) and Luke Mansfield (government co-chair) Middle row – Dr Scott Avery, Professor Bruce Bonyhady AOM, Giancarlo de Vera, Dr Phillip Gould Bottom row – Marion Hailes-MacDonald, Commissioner Rosemary Kayess, Professor Julian Trollor, Gemma van Halderen PSM. Not pictured: Zoe Dendle, Carley Northcott

The National Disability Data Asset Council (the Council) met on 6 May 2024.

During this meeting the Council approved the:

  • priorities for Australian Government funded research and sharing information.
  • proposed work and membership of the Disability Data Development Scoping Panel (Scoping Panel), which will provide advice to the Council on future panels they could set up.
  • proposed work of the Disability-informed Ethical Oversight Panel, which will review project proposals with a disability perspective to make sure projects do not cause harm to people with disability.
  • the membership of the Ethical Oversight Panel will be decided out of session ahead of the next meeting.

The Council also commenced discussion on:

  • community engagement
  • the process for researchers to apply and use the National Disability Data Asset. This includes the Charter requirement for researchers to share accessible findings publicly.

These two items will be discussed further at the next meeting, which will be held in August 2024.

News from the Council in Easy Read and in Auslan.

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