The Charter will make sure the disability community knows how their data is being used and are comfortable with how it is being used. The Charter includes principles and rules for the disability data asset. There are 8 principles. The principles explain how we will manage the data asset. The rules list what the data asset can be used for and what it can’t. These will protect the information and how the information is used. We discussed the principles and rules with people with disability during the Pilot.
We will finalise the Charter after consulting with representatives from the disability community. We will then give it to disability ministers for approval. All researchers, including government researchers, will need to follow the principles and rules in the Charter. The National Disability Data Asset Council and disability ministers must agree to any changes to the Charter. These changes will then need to be tested and agreed with the disability community before governments agree.
For more information on the principles and rules in the Charter, please see the Charter factsheet.
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For a copy of the Charter factsheet in braille please contact the project team.