The National Disability Data Asset Charter (the Charter)

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The Charter will make sure the disability community knows how their data is being used and are comfortable with how it is being used. The Charter includes principles and rules for the disability data asset. There are 8 principles. The principles explain how we will manage the data asset. The rules list what the data asset can be used for and what it can’t. These will protect the information and how the information is used. We discussed the principles and rules with people with disability during the Pilot.

The draft Charter has undergone consultation with representatives from the disability community. This feedback has been incorporated into the draft Charter. The draft Charter has been approved by state and territory officials and will be taken to the National Disability Data Asset Council for consideration and endorsement in early 2024.

The proposed Charter will then be taken to disability ministers for approval. All researchers, including government researchers, will need to follow the principles and rules in the Charter.

Any changes to the Charter after this time would need to be agreed to by the National Disability Data Asset Council and disability ministers. These changes will then need to be tested and agreed with the disability community before governments agree.

For more information on the principles and rules in the Charter, please see the Charter factsheet.