One way the National Disability Data Asset will be co-governed is through the Council. Another way it will be co-governed is through panels of individuals, including people with disability. The panel members have experience and knowledge about disability. Their role is to provide support to the Council on priority areas for the disability data asset.
DSS have been working with Disability Representative Organisations and state and territory officials to seek the Council’s agreement to set up the first three panels. These include a:
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- Disability Indicators Panel
- Disability-informed Ethical Oversight Panel
- Disability Data Development Scoping Panel.
Disability Indicators Panel
The Disability Indicators Panel will include people with disability and provide advice about how the disability indicators should and should not be used from a disability and human rights perspective to support appropriate communication of insights. The Panel will support the development of an improvement plan for the disability indicators work.
The Disability Indicators Panel is chaired by Peter Tully.
Peter has a long history of working to uphold the rights of people with disability and has held multiple advocacy and advisory roles. Peter has a strong interest in how data can support government decision-making.
The Disability Indicators Panel met for the first time on 30 April 2024.
Disability-informed Ethical Oversight Panel
The Disability-informed Ethical Oversight Panel will review project proposals with a disability perspective. They will develop a framework to guide consistent assessments of project proposals seeking to access data from the National Disability Data Asset. They will only recommend projects that do not cause harm to people with disability be approved.
Disability Data Development Scoping Panel
The purpose of the Disability Data Development Scoping Panel is to provide the Council with advice on future panels they could set up.
The panel will make recommendations on priority data and knowledge gaps that future panels could focus on until the end of 2025.
Expressions of interest to join panels
Expressions of interests for the Disability-informed Ethical Oversight Panel and the Disability Data Development Scoping Panel have closed.
All applicants will be provided with an outcome once the Council have considered the shortlisted candidates. The panels will be operational from June 2024.
We will continue to update our website with other opportunities to shape the development of the National Disability Data Asset.
You can find more information about the Council by going to Messages from the Council, About the Council, or Panels that support the Council.